Trip 3-Breathing Problems
8:30 pm - I talked to Miriam this afternoon. The geneticist and pulmonary specialist have both come by to look at Emma. The pulmonary speciist (lung doctor) had some theories that line up nicely with what we have experienced. Basically, it looks like her body's normal response
Trip 3-Breathing Problems
As most of you have hopefully heard, we are still in Little Rock after being discharged yesterday (Saturday). Emma was doing pretty well, though I could tell she was having a little more trouble again- grunting while breathing on Saturday. She also started the day with a long episode of
Trip 3-Breathing Problems
6:15 pm - Miriam and Emma are still in Little Rock. Emma had a breathing fit last night as we loaded her into the car, so we brought her back into the hospital for observation over night. Then this morning she had a really bad episdode, similar to the
Trip 3-Breathing Problems
9:30 am - Doctor says Miriam and Emma should be ready to leave the hospital tomorrow morning (Saturday)! They're wanting to send oxygen home just in case, but they were surprised to learn that our insurance doesn't cover that, so we'll see what
Trip 3-Breathing Problems
9:30 pm - Emma is done with the procedure, and it went well. She is recovering nicely, and the results aren't too bad, or very un-expected. Basically, the doctors were able to confirm a moderate amount of leakage around the patch, and that a couple of the
Trip 3-Breathing Problems
4:30 pm - I talked to Miriam this afternoon. Looks like we may be home for Thanksgiving after all! No guarentees, but it's sounding like they'll do the catheterization on Thursday, and then send her home as soon as she recovers from that (few days?
Trip 3-Breathing Problems
6:30 pm - The doctors have scheduled a heart catheterization for Thursday. They're thinking that some of the veins and arteries may be too thin, and this will let them know for sure. If there's a localized thin area, they'll be doing some
Trip 3-Breathing Problems
10:30 am - The doctor just came by and talked to Miriam. At first, the doctors thought that the Echocardiogram from yesterday was looking fine, and they continued looking for other reasons for these problems. However, after another series of virus tests, they've pretty much ruled out
Trip 3-Breathing Problems
1:00 am - I think Emma just gets home-sick for the Children's Hospital. She didn't do as well today, more coughing and labored breathing. Then this evening she had a period of struggling with getting enough oxygen, labored, fast breathing, etc. So she just took
Trip 3-Breathing Problems
Hi all. I am home for just a few minutes to shower and grab a few things I need. We are staying at least one more day and night in the hospital. Dr. Youmans says if she stays stable today he will discharge her tomorrow morning. We will be going
Trip 3-Breathing Problems
2:30 pm - The second RSV test came back negative today. Emma is doing great. Miriam says she's happy and relaxed, breathing fine. She's off oxygen, no IV fluids, basically eating and sleeping as if she was at home. The doctor said her chest x-ray
Trip 3-Breathing Problems
4:45 pm - Emma continued to have breathing problems due to congestion last night and this morning, so we decided to take her back in to the local hospital today. The RSV test is negative, so it looks like just a bit of pneumonia. My opinion on part of