Trip 3-Breathing Problems
7:30 am - The last few appointments are being finished up today - I'm hoping to be able to pick Miriam and Emma up tomorrow! Unless something else comes up, we should be home this weekend. We do have another appointment next Thursday, and more into January
Trip 3-Breathing Problems
7:15 pm - The doctor is now saying he wants to observe Emma for another three to four days, and then she can come home so long as everything is looking good. There's one more lung test that they're going to do, probably tomorrow. A
Trip 3-Breathing Problems
6:00 pm - The results of the chromosome test have come back negative. Originally the geneticist said that indicated only that she would need another test. But maybe she's doing well enough that they'll cancel that - we don't know at this point.
Trip 3-Breathing Problems
5:30 pm - I just arrived back from the hospital where I saw Emma and dropped Miriam off to stay with her. Emma is looking great! She's still very sleepy because they are gradually weaning her off all the sedations, but she looks much more comfortable and
Trip 3-Breathing Problems
11:30 am - Emma is coming off the ventilators now! The hospital just called. Wow! We've been hoping for this for so long, it didn't seem like it was ever going to happen! So, change of plans, we'll be heading back down to
Trip 3-Breathing Problems
4:00 pm - Miriam called the hospital this afternoon. The nurse said that Emma is doing really well. They turned the ventilator "way down" and lowered another pressure number, and the oxygen levels in her blood stayed where they're supposed to. So that's
Trip 3-Breathing Problems
7:00 pm - Just a note to let you know that Miriam and I have returned home for a few days to spend some time with Elise (who is THRILLED to home again!). Emma seems to be improving VERY slowly, so while she's stable but mostly sleeping
Trip 3-Breathing Problems
Yet another day of waiting has passed. Apparently the ear doctor did come yesterday. Oddly enough, I was there all day and didn't see them, but they must have come while I was taking a nap. I saw one lady, so she might have been the ear doctor
Trip 3-Breathing Problems
10:30 pm - Emma is fine, but still on the ventilator. The doctors have upped some pressures and medicines to hopefully help her lungs strengthen a bit. Some of the numbers seem a bit better today. I'm going to try to talk with the doctors tomorrow about
Trip 3-Breathing Problems
9:00 am - I'm back down in Little Rock for a few days with Miriam and Emma. Emma is doing really well. Her numbers are looking pretty good, and they're really starting to talk about taking her off the ventilator (maybe today!). There's
Trip 3-Breathing Problems
7:00 pm - Email from Miriam: I finally got to talk to the resident doctor today. She explained what the plan is and also explained better what happened over the weekend. I had never got the full story. Basically over the weekend when they tried to wean Emma off
Trip 3-Breathing Problems
2:30 pm - We had a great Thanksgiving weekend with family. And it was great having Elise, Miriam, and I all in the same building for a few days as we stayed in an apartment Wednesday through Sunday. Emma is still waiting on her heart cath - looks like