Trip 2-Eating Difficulties
9:30 pm - Surgery went well yesterday. Emma hasn't eaten anything today, so she'll probably lose a bit of her newly-gained weight and energy by tomorrow when she's supposed to start eating again. We've had a second geneticist tell us he
Trip 2-Eating Difficulties
11:00 pm - Surgery is tomorrow - not quite sure what time. We've heard from many friends coming to visit over the next few days. THANK YOU!! Miriam is very grateful for the time you're taking to come to be with her. Still planning on
Trip 2-Eating Difficulties
10:30 am - Miriam tells me that Emma was wide awake last night until midnight, looking at her fish mobile. She would follow each fish around with her eyes and smile, then look at the next one and follow it around. And then as soon as it would stop
Trip 2-Eating Difficulties
A note from Miriam regarding the pictures. If you look really closely at the second one you will see a smile hiding under that pacifier. The two pictures with me in them are actually pictures of me getting a lesson in inserting an NG feeding tube which I proceeded to
Trip 2-Eating Difficulties
12:30 pm - I'm headed back to Little Rock. Miriam just called and asked me to come back as soon as possible. Emma hasn't been doing too well with food, so she's on the feeding tube, but it sounds like there may be
Trip 2-Eating Difficulties
12:30 pm - Emma gained two ounces yesterday! The feeding tube is helping. Even better news is that they did the swallow study this morning, and thickened her formula. In her last feeding, she ate all 2 ounces on her own! The tube will stay in for a while
Trip 2-Eating Difficulties
9:30 pm - Well, Emma didn't do so well yesterday. What with all the tests taking up her eating time (no food from 7 am - 3 pm) and eating poorly during the night, she lost another 10 oz(!) almost overnight. We feel that this is a
Trip 2-Eating Difficulties
10:00 pm - I'm back from Little Rock now, and Miriam and Emma are still doing well in the hospital. Aftera a second echocardiogram (basically an ultrasound of the heart) this morning, the doctor met with us this afternoon. He said that heart seems to be doing
Trip 2-Eating Difficulties
12:10 am - Miriam called from the hospital. Emma is eating well, but still losing weight. The tests run so far don't show anything obviously wrong. One doctor thought the two working veins from the lungs to the heart look too small, so they're going
Trip 2-Eating Difficulties
12:30 pm - Every time the nurses try to wean Emma off the oxygen, her oxygen blood levels drop below what they like so they are gong to send her down by ambulance so she can stay on that. Hopefully Miriam can go with them in the ambulance -
Trip 2-Eating Difficulties
10:00 pm - Well, it's been a while since I've updated the page. Many things to do as soon as we got home (house is almost ready to sell), and Emma was doing great at first. Tonight she and Miriam are staying at the Siloam
Trip 1-Heart Surgery
8:45 am - We're coming home! The hospital just called our apartment and confirmed that Emma is being discharged this morning.