Trip 3-Breathing Problems
9:30 pm - Emma is done with the procedure, and it went well. She is recovering nicely, and the results aren't too bad, or very un-expected. Basically, the doctors were able to confirm a moderate amount of leakage around the patch, and that a couple of the
Trip 3-Breathing Problems
4:30 pm - I talked to Miriam this afternoon. Looks like we may be home for Thanksgiving after all! No guarentees, but it's sounding like they'll do the catheterization on Thursday, and then send her home as soon as she recovers from that (few days?
Trip 3-Breathing Problems
6:30 pm - The doctors have scheduled a heart catheterization for Thursday. They're thinking that some of the veins and arteries may be too thin, and this will let them know for sure. If there's a localized thin area, they'll be doing some
Trip 3-Breathing Problems
10:30 am - The doctor just came by and talked to Miriam. At first, the doctors thought that the Echocardiogram from yesterday was looking fine, and they continued looking for other reasons for these problems. However, after another series of virus tests, they've pretty much ruled out
Trip 3-Breathing Problems
1:00 am - I think Emma just gets home-sick for the Children's Hospital. She didn't do as well today, more coughing and labored breathing. Then this evening she had a period of struggling with getting enough oxygen, labored, fast breathing, etc. So she just took
Trip 3-Breathing Problems
Hi all. I am home for just a few minutes to shower and grab a few things I need. We are staying at least one more day and night in the hospital. Dr. Youmans says if she stays stable today he will discharge her tomorrow morning. We will be going
Trip 3-Breathing Problems
2:30 pm - The second RSV test came back negative today. Emma is doing great. Miriam says she's happy and relaxed, breathing fine. She's off oxygen, no IV fluids, basically eating and sleeping as if she was at home. The doctor said her chest x-ray
Trip 3-Breathing Problems
4:45 pm - Emma continued to have breathing problems due to congestion last night and this morning, so we decided to take her back in to the local hospital today. The RSV test is negative, so it looks like just a bit of pneumonia. My opinion on part of
Trip 3-Breathing Problems
11:45 am - Emma had a checkup and her tube stitches removed this morning in Siloam Springs. She's been having some congestion problems lately, and the doctor says she has the first stages of pneumonia. So she has a few shots scheduled for that. Good news! She
Trip 3-Breathing Problems
6:00 pm - Miriam and Emma are home! Emma is looking good, she's up to 8 pounds 5 ounces, heavier than she's ever been (by one ounce) and is looking healthy. I'll see if we can get some pictures up soon.
Trip 2-Eating Difficulties
3:00 pm - Emma is doing well. She started eating again yesterday at noon, and was up to 2 ounces every three hours (previous level) by 6 pm Tuesday and doing fine. Today she ate 1.5 ounces from the bottle with no gagging problems! Definately an improvement. The
Trip 2-Eating Difficulties
9:30 pm - Surgery went well yesterday. Emma hasn't eaten anything today, so she'll probably lose a bit of her newly-gained weight and energy by tomorrow when she's supposed to start eating again. We've had a second geneticist tell us he