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I thought I should write so that I am not only writing when there is bad news to share. Emma is doing well. We had several days after we got home of pretty bad congestion and little energy, but she appears to be doing better since last night. She has
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Emma had a follow-up appointment with Dr. Youmans today. She has been sleeping a lot lately, but when I woke her up to go to the doctor she stayed awake the whole time. She looked like she was feeling a lot better and even flashed us a few smiles. She
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We left Little Rock in sprinkles of rain at about 6:45pm. We got home about 10:45pm. We didn't have any difficulty on the way home other than Emma throwing up her 7:00 meal. We decided not to feed her again in the car as she
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Emma is doing good - so good the doctor said she could come home today! We're still trying to work out logistics, but it looks like I'll be driving down this afternoon to get her. They think she has a viral infection, not bacterial, but I
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As Miriam said, Emma was flown down to Little Rock's Arkansas Childrens Hospital last night. This morning Miriam and I drove down to Little Rock. She's staying with Emma now, while I'm already back in Siloam Springs. Emma is doing ok, but is definately
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Well, as I write Emma is on her way down to Little Rock via helicopter. She is actually very stable at the moment so don't let the helicopter ride worry you. It is just the easiest way to get her down there without risking something happening on the
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I was hoping that I would never have to write these words again, but I guess not. Emma had another episode this morning. It was not too bad, but she is still a bit worked up over it. I spent a long time just holding her trying to get her
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We're home! I picked up Miriam and Emma Saturday morning and we arrived in Siloam Springs about 3:00. Emma is now relaxing at home with her oxygen machine.
Trip 3-Breathing Problems
7:30 am - The last few appointments are being finished up today - I'm hoping to be able to pick Miriam and Emma up tomorrow! Unless something else comes up, we should be home this weekend. We do have another appointment next Thursday, and more into January
Trip 3-Breathing Problems
7:15 pm - The doctor is now saying he wants to observe Emma for another three to four days, and then she can come home so long as everything is looking good. There's one more lung test that they're going to do, probably tomorrow. A
Trip 3-Breathing Problems
6:00 pm - The results of the chromosome test have come back negative. Originally the geneticist said that indicated only that she would need another test. But maybe she's doing well enough that they'll cancel that - we don't know at this point.
Trip 3-Breathing Problems
5:30 pm - I just arrived back from the hospital where I saw Emma and dropped Miriam off to stay with her. Emma is looking great! She's still very sleepy because they are gradually weaning her off all the sedations, but she looks much more comfortable and